Hi.I was diagnosed with lung cancer 32mm in the summer of 2023 received a light dose of chemo followed by radiotherapy which was completed on 19/12/23 .
I was told in early 2024 the tumour had shrunk to 9.7 mm and treatment was progressing favourably .Various scans but no further treatment until meeting on 22/7/24 when I was informed the cancer had spread to my liver spine and kidney which came as a major shock and the cancer was now stage 4 incurable .I was given a very large dose of chemo on the 5/8/24 plus immunotherapy lasting for 10 hours which wrecked me .I ended up falling down stairs on 13/08 head trauma bleed on the brain few broken bones fractured skull I was unable to have further treatment because of the injuries . After an MRI scan on 5/11/24 I was informed the I now had 5 tumours on the brain and the other cancers had got bigger plus cancer of the abdomen . Now the reason for this mini novel is I am suffering from constant sickness doctor prescribed dexamethasone which didn't help hallucinations jittery etc.she then suggested increasing the dose but I told her I was unable to tolerate it she then prescribed cyclizine which isn't helping .I was wondering if anyone has any suggestions that might help. Kind regards Avon
Hi AVON and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis and your story this far.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated......
Living with incurable cancer - incurable patients only
..... support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above…….……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow 3 working days for a reply.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
You can also have a look through THIS LIST where you will find all our dedicated cancer 'type' support groups listed.
