I have had myeloma for 5 yrs, having treatment for last 2. I had stem cell transplant last year in Oct and all went well. Since then I have been on maintenance drugs mainly lenolidamide. Today I have noticed blood in my stools and was wondering if I should be worried or is it just another side effect.
Thanks for any responses given
Hi Map1 and a very warm welcome to the Macmillan Community but sorry to hear about your concerns.
I have been on my journey with two types of rare T-Cell Non Hodgkins Lymphomas for over 25 years and over those years I have had many treatments including 2 Allo (donor) Stem Cell Transplants (SCT)….. but the reality is that ‘other’ medical issues do come along and having a SCT does put the body through a lot.
I also had blood in my stool a few years back, it was all checked out (FIT Test, Colonoscopy, MRI and eventually a Prostate biopsy) and nothing of concern was found apart from me having an enlarged Prostate and some long lasting radiotherapy damage to my bum that will often bleed and some Haemorrhoids.
So my simple answer is you must go see your GP to get this checked out.
Navigating this journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated……
Myeloma support group
Stem Cell Transplant support group
…… as these groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link(s) above then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Do get back to me if you need further help navigating the community.
