I’ve just been diagnosed with lymphoma for the third time in 4 years. Is this a normal timescale
Hi Gillieg and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
The online community is divided into different support groups where you can ask questions, share experiences and get support.
As you haven't said what type of lymphoma you have, can I recommend that you take a look through this list to chose the appropriate one. Alternatively, you could tell me the name of your lymphoma and I can provide you with a direct link to the group.
Once you've joined you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Gillieg and a second warm welcome to the Community although sorry to hear about your Lymphoma journey. I am Mike and I help out around our Lymphoma groups.
I’ve just been diagnosed with lymphoma for the third time in 4 years. Is this a normal timescale
The simple answer to your question is unfortunately yes.
This can be rather normal as it all depends on what ‘exact’ type of Lymphoma you have….. many Lymphoms types are seen as incurable and life long conditions…… but others just need the right combination of treatment to do the job.
For some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. the longest remission I had over my first 14 years was about 9 months requiring me to have more treatments.
I eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ my be different I most definitely appreciate the challenges of this journey rather well….. but I will say that I am just over 9 years out from my last treatment, I turn 69 next month and I am living a great life.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.
