My husband has been diagnosed with diffused peritoneum mesothelioma. The prognosis is 18-22 months although immunotherapy may help to slow it down. Can anyone share a success story please? He will be fitted with a permanent drain for his ascetics next week then treatment should start the following week. Obviously e have no idea how his body will respond. Because of this news we were hoping to do a 35 day cruise in January. WI’ll this be possible? Would he get insurance? Would they stop the treatment for this type of holiday? He is a fit 58 year old
Hi DonnaS and a very warm welcome to the Macmillan Community but sorry to hear about your husband’s Mesothelioma diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type or support challenges will help you a lot……. I have a completely different type of cancer and treatment journey although I do also have Asbestosis.
This New to Community area is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…
……. support group.
This group is a safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our……
Supporting someone with incurable cancer
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
As for travel insurance, this may a challenge. Do not book anything until you have cover in place….. I suggest you call a few insurers directly as this means that you have answered all the questions correctly and in doing this a suitable policy can be offered and price given.
Macmillan Volunteer I can’t be perceived to recommend any companies but do have a look through the link below…….
……… that is an ongoing discussion thread (do go to the bottom of the thread and hit the >> to take you to the newest posts) in our Travel insurance group as it's where the majority of recommendations from other forum members are.
To connect with any groups I have highlighted click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community.
