New and rare type of breast cancer

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Hi all,

I'm currently waiting on my full diagnosis and treatment plan after surgery in 2 weeks.

My initial diagnosis is based on my histology report and stated being highly suspicion of malignancy e.g. salivary gland type breast carcinoma or microglandular adenosis invasive carcinoma. 

So far my surgeon and Consultant have been great, however, my surgery was postponed as another lump in my breast was found. An MRI breast with contrast has been performed yesterday and my next consultation is on the 4th Sep.

I'm exhausted as I still don't know if I require Chemotherapie/Radiotherapy. I got no breast cancer nurse either atm as I would meet her next week.

Thanks for having me.

SG

  • Hi  and a very warm welcome to the Community but I am sorry to hear about your ongoing diagnoses.

    Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help you a lot. (I have a completely different cancer).

    This New to Community area is like our reception desk where we look to try and direct you to the best part of the Community for you to get support.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you join and put up your own post in our dedicated Breast Cancer support group.

    This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….

             Breast cancer

    ……. and when the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.

    You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post]or [+] in the top right of the group page.

    You can copy and paste the text from this post into your new post.

    The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Dear Highlander, thank you for your kind reply and guidance for I can find further support. It is an overwhelming time so your reply means a lot.

    SG

  • It is a challenging time….. I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable type of Non Hodgkins Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of Non Hodgkins Lymphoma was presenting……. but I am coming up to 9 years out from my last treatment and getting on with life - I wish you all the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge