Thymus and MDT meeting

 lisa0 

Hi Lisa and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

My son has a tumour on his thymus. Some are benign, some are thymus cancer, some are thymoma, which is less aggressive than Thymus cancer. Like yours his  was found following a chest x ray (for something else). I don't know how they work it in your area, but in his case he first had a CT scan, then a  biopsy, then an MDT meeting and then a PET scan. PET showed no spread to lymph nodes. MDT is where they decide how to proceed with treatment etc.

My son was prescribed 4 to 5 chemo sessions. (Cisplatin,Doxyrubicin &Cyclophosphamide) to shrink the tumour prior to surgery to remove Thymus. His tumour was 5 cm when they found it. Thymus tumours are very rare, so it is hard to find much info on them. After round 3 of chemo they thought it had shrunk enough for surgery,and would shrink a bit more after round 4. But then,following a "pre-op" MRI, although the surgeon thought he could do it then, the radiographer advised  rounds 5 & 6 of chemo because though smaller, it was near his aorta and left lung. So now he has done round 5 chemo and is booked for another pre-op MRI in a fortnight from now, when he will be just into chemo round 6. His tumour turned out to be a thymoma. We are very optimistic that the surgery will get rid of it altogether.

Thank you. I have had ct scan and PET scan so far. Now waiting regarding the MDT meeting this Friday.

There is an organisation called "Thymic UK". They are having a conference in Cambridge about thymus cancers, for patients. 7th May. You might be able to get there.