Hello everyone xx
My name is Liz. 67 yrs old and gave Squamous cell carcinoma head and neck. Extremely frightening time for our family. Had biopsies done 13th and waiting for MDT in coming fortnight or so. Definitely mass under my tongue base, metastatic cells in my left node which I'd hardened and doesn't move.
I really really want to fight! But the waiting is dreadful. I can't eat because of post panendoscopic pain. Looks like they have expised a nerve in my tooth during procedure. Any tips on oral pain management? Preferably not pharmaceutical, as I also have severe diverticulitis and meds cause issues there xx
But..on a lighter note...hello everyone ! Blessings to all of you
Hi Liza W and a very warm welcome to the Community but sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Head and Neck Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Head and neck cancer
…… then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
Hi Liza W
I’m Dani and I’m a five year throat cancer survivor. I hang out in the head and neck cancer group Mike linked. I see you’ve joined. Pop on a post to say hi and you’ll get some help from a very friendly bunch of patients.
You’ll definitely need pharmaceutical help in treatment but your team are well versed in accommodating co morbidities
Hopefully see you there.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
