After tests i got the news i had prostate cancer by telephone- the doctor said a letter would be sent to my GP and me and he wanted to start medication and i would be assigned a nurse. whilie i got the course of tablets and the first injection ive had no calls from a nurse is this normal ?
Hi Gavriel and a very warm welcome to the Community but sorry to hear about your diagnoses.
As we all know the NHS system is not functioning as it should and things like this is happening. I would get on the phone and chase this up be it using any phone number you have on any communications from the hospital but you can also do this through your GP…… unfortunately at times we have to advocate fir ourselves.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Prostrate Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link > Prostate cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
