Hi , I and my husband are just embarking on this very scary journey.
my husband went into hospital due to pain in his left hand side where he was giving a CT scan and giving naproxen and antibiotics and told was infection and sent home less then a week later was asked to go back for another Ct scan with dye and we found out 4/5 days later he had likey lung cancer with some lymph nodes in chest area and a couple of lymph nodes in his neck.
He had biopsy done on the lung and his neck where was told the lymph nodes on neck were very tiny and that they could only get 30mls of fluid from his lungs.
so he was booked in to have a EBUS
in between all this the pain in his stomach moved from his left side to lower right side and he was in so much pain he was told to go to hospital where he again had another CT scan.
they haven’t definitely said it’s cancer but on paperwork it says disseminated peritoneal metastatic disease which from what I have briefly read online is cancer.
they also said he had a couple of legions in the brain , but when I called the caseworker up regarding something she asked if I knew anything about his stomach area I said only what I read but not been told much more and she asked about the head and I said yes we where told about the legions and that he has been giving steroids which she said yes he needs to not stop taking them but said rest of his head was clear which I was grateful for as I have lost my dad and mum both to brain tumours.
Have been with my husband 36 years we have 4 grown children and I am scared stiff.
Hi Disney68 and a very warm welcome to the Macmillan Community but sorry to hear about your husbands ongoing diagnosis.
A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) and I can see that you gave abreast joined a few of our cancer specific support groups. These groups are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your husband and indeed yourself you may benefit from joining and posting in our Carers only support gRoyo where you will connect with others navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.
Do get back to me if you need further help navigating the community.
