Hi all, I was diagnosed with lymphoma non hodgkins, stage 1, MALT, in Feb 2023, started two months Rituximab treatment, once a week for 8 weeks, last May 2022, I now have to be monitored every three months for two years.
i had my first monitoring consultation a month or so ago and I’m in remission, which is good news and I know for peace of mind at least I will get monitored every few months. My 2nd monitoring date with consultant is mid February.
I was given Rituximab as my consultant said is best treatment for someone with Sjogrens Syndrome which I have probably for 10 years.
My question is this, has anyone else had this treatment and found that they know tend to get tiny skin sores, over their body, mainly on back and arms? I also had steroids given at same time as the Rituximab. I’ve also found that even though I’m active doing regular workouts, I’ve put on weight. A nurse on Macmillan said that both these drugs can cause you to gain weight, I wonder if anyone else has had increase weight from it? Just wondered how long these drugs stay in your body. Next time I see my consultant I will mention it anyway.
Any views would be appreciated. Btw, I was told it is treatable, but it won’t go away, so just hoping it doesn’t return too soon. Consultant said possibility it can return within 5 years.
Hi Fab123 and welcome to the Community. I am Mike and I help out across our Lymphoma Groups...... I see that you have joined and posted in one of the threads on our NHL group so I will reply to you on that post.
The New to Community is like our reception desk where we look to direct people to the best part of the Community for to get support so people don't tend to hang around this area.
Hi Chris R and a very warm welcome to the Community but sorry to hear about your diagnoses.
The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Myeloma support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link > Myeloma then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
Give me a shout if you need further help.
