Brain Tumour

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Hi everyone.

Back in July, my Mum was diagnosed with a low grade glioma by the temporal lobe. In November she had a craniotomy and the surgeon managed to remove 50% of the tumour. The rest is too deep into the brain to be removed by surgery so it will be tackled with at least radiotherapy but probably chemotherapy as well. He did say that the bit of tumour that remains, is beginning to transform so I guess he means it's turning cancerous. Unfortunately, 10 weeks on from the surgery, we are still waiting for the results of the tumour analysis so that we can move on with the next stages of treatment. 

The point of me writing this was to ask if anyone knows what to expect next? What kind of radiotherapy will she have? What side effects will she have? I've done some research but I wanted to ask on here too so that I can help her in the best ways that I can.

Thank you all in advance for your help x

  • Hi  and a very warm welcome to the Macmillan Community but sorry to hear about your mum’s diagnosis. 

    A cancer diagnosis in the family can be such a challenging and stressful time but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot (I have a totally different type of cancer)

    The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Brain tumours support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    As for the practical and emotional challenges of supporting your mum and yourself you may benefit from joining and posting in our Carers only support group where you will connect with others navigating the exact same support challenges.

    To connect with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and support all the family.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thank you so much for your reply, I've joined both groups. Thank you for pointing me in the right direction Blush