Hi all, I've was diagnosed over a year ago with bladder cancer, fortunately the cystoscopy showed it was only attached to the lining so I underwent a TURBT followed by 6 weekly and 6 monthly Epirubicin via a catheter. (Most unpleasant but necessary).
The cystoscopy after showed it was back, so another TURBT. The histology from the second one showed up small cell cancer so I was referred within an hour from the Urology consultant to the Oncology consultant. They explained what they had discussed in their meeting and within 4 days I had had blood tests, a CT scan and I was connected to a chemotherapy pump. Quite a week!
The side effects of chemotherapy are not pleasant but it's worth it if it's saving your life.
I have just completed my 4th session yesterday, 3 weeks apart. I'm pleased to say that the second CT scan showed no spread and the bladder wall is thickening, which I believe is a good thing.
I have a consultation 2nd January with the surgeon and I believe my operation is scheduled mid January to remove my bladder and whatever else they deem necessary.
I can't say I'm looking forward the difference it will make in day to day life after but needs must as they say.
Trying to stay positive is a challenge but you know it's all for the best in the long term.
Anyway, hello everyone and if my experience can help anybody just let me know.
Hi BazH55 and a very warm welcome to the Community but sorry to hear about your journey so far.
Navigating the cancer journey can be such a stressful and challenging time but getting support from people who have walked the ‘exact same' cancer journey can help a lot. (I have a completely different cancer).
The New to Community is like our reception desk where we look to direct you to the best part of the Community for you to get support. The Community is divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Bladder Cancer support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group click on this link> Bladder cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family.
Do get back to me if you need further help navigating the community.
