Just had the call from my doctors this morning to tell me I have MGUS and now to wait for a haematologist appointment. She thinks that will be around 2 months time. Nervous two months is all I can say. My daughter had to wait two years to see a gastroenterologist so services are very stretched!
Am I right in thinking at 37 it’s quite young to have it?
I have so many questions for the hospital when I get there. My sister died of thyroid cancer so it’s all a bit scary to have the C word mentioned to me! I have other symptoms like extreme fatigue and tingling hands/feet. Unsure if it’s coincidence or not. Generally I don’t like coincidences but on this occasion I’m hoping so.
Hi Bigjim and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It's perfectly natural to feel nervous about what lies ahead when you've had a diagnosis.
As the online community is divided into different support forums, I'm going to recommend that you join the myeloma forum where you'll connect directly with others who have MGUS to ask questions, share experiences and get support.
To join just click on the link I've created and, once you've joined the forum, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
