I was diagnosed with cml about 9 months ago. I am on imatinib with a good response, but my last test for bcr-abl increased from 0.67 to 1.1 does anyone know if this can happen. Bit worried now. can they fluctuate? Thanks Karen x
Hi Karen and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It's natural to worry when something changes with your results, etc.
As the online community is divided up into different support groups, I'm going to recommend that you join the CML group as you'll then connect directly with others who have this type of cancer to ask questions, share experiences and get support.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and any treatment you've had so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
