My daughter has Myelofibrosis stage 2-3. She on her 4th injection of Interferon. She is being very brave about it, to the point of almost pretending there’s nothing wrong. We suspect it’s because she doesn’t want her Mum & Dad worrying. But this makes us even more concerned.
Many must be going through this. But how do you (how can you) get an open/honest conversation going on this awful subject. We are not finding it easy.
Hi again Gandi Bear sorry to hear about your challenges.
Over my 24 years my family (I went through a lot of treatment including 2 Stem Cell Transplants) had a everything on the table policy…… this is very important when it comes to Stem Cell Transplant as there are some difficult bumps n this road that needs to be navigated.
I see that you have not joined our MDS/MPN/ET/PV/myelofibrosis (MF) support group as well as our Stem Cell Transplant support group. These groups are a good place to talk with others who are navigating the same journey.
