Hi. I've just been diagnosed with NHL. I've been given a load of bumf to read and can't believe the number of side-effects there are for chemo. My specialist said the side-effects are minimal but it doesn't sound like it. I need to maintain as normal a lifestyle as possible as I'm a carer for someone with MS. To be honest, he's being very selfish and is more concerned about what's going to happen to him while I'm having treatment. I'm going to ring Social Services about extra care but if I'm ill, there's no-one to look after me. Is anyone else in the same position.
Hi thegothmother and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike and I help out around our Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.
There are over 60 types and sub-types of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group first click on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
You can also scroll through other members posts and click “Reply” to get involved.
I will keep an eye open for you but if you are not sure what type you have pleased do get back to me on this post and I will help you out further.
Hi thegothmother and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that you have recently been diagnosed with NHL, which I assume stands for non-Hodgkin lymphoma. If I'm wrong with my assumption then just let me know what type of cancer you have and I'll give you the correct link.
As the online community is divided up into different support groups I'm going to recommend that you join the non-Hodgkin lymphoma group, where you can ask questions, share experiences and get support. You can also see if anyone else is in the same position as you regarding being a carer.
To join just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
