Rare olfactory neuroblastoma

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Hi, I have had surgery to remove the tumour in March and have finished 6 weeks of radiotherapy. I just feel everything has hit me now and I feel I'm punishing people around me because I feel lonely, scared and not myself anymore. 

I have an mri beginning of Oct to see results and I cannot get this out my mind worrying it will be bad news. 

Anyone had simular 

Thanks 

  • Hi  and welcome to the Macmillan Community but I am so sorry to hear about your diagnoses.

    The cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.

    The Community is actually divided into dedicated Cancer Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Head and neck cancer support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect with a group click on this link Head and neck cancer then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

    When you are ready you can introduce yourself by clicking “+new” or “+” in the top right next to the group title.

    You can copy and paste the text from this post into your new post…… you can also scroll through other members posts and click “Reply” to get involved.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Do get back to me if you need further help navigating the community.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hello Tazzer14,

    I am just wondering whether you are still active on this forum. 

    I am recently diagnosed with olfactory neuroblastoma and I have just finished my 6 weeks radiotherapy.

    Could I get some advice from you?