Macmillan’s website will undergo planned maintenance from Monday 1 Dec at 10:30pm to Tuesday 2 Dec at 9am. During this time, the Community will be partly unavailable. Members won’t be able to log in or join, but you will still be able to read posts and discussions.
Macmillan’s website will undergo planned maintenance from Monday 1 Dec at 10:30pm to Tuesday 2 Dec at 9am. During this time, the Community will be partly unavailable. Members won’t be able to log in or join, but you will still be able to read posts and discussions.
Please can you tell me how to manage my side effects of sickness / sore mouth and fatigue? I am feeling very low already facing so many treatments ahead of me and still am worrying that it won’t work.
I was diagnosed very soon after being Ill with COvid and my neck swelled up during this illness. I am also petrified of getting COvid again now and possibly getting other Cancers in future
Hi Bria and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike and I help out around our Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.
At the moment this all feels both physically and mentally impossible but you will get there, I totally understand as I was in the exact same position between mid 2013 to late 2014….. but due to my type of NHL and how it was presenting I had a combination of 45 radiotherapy zaps, over 750 hrs of chemo and 2 Allo (donor) Stem Cell Transplants but I turn 68 this Nov and I am doing great. Unlike my incurable NHL that was treated to get me into remission your type of Large B Cell is being treated with an aim to cure….. but it will be rough going but this has to be done to evict this uninvited squatter in your body.
I do see that you have already joined our dedicated Diffuse Large B-Cell Lymphoma This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect with the group click on the “Bold Link” I have created above then once the group page opens you can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
I will keep an eye open for you in the group and I will be able to help you out further.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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