Hi I have been diagnosed with large B cell lymphoma and have just had my first Chemotherapy last month which was awful and I am now dreading my second Chemo next week. I am wondering how I will get through the six sessions planned by my doctor

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Please can you tell me how to manage my side effects of sickness / sore mouth and fatigue? I am feeling very low already facing so many treatments ahead of me and still am worrying that it won’t work.

I was diagnosed very soon after being Ill with COvid and my neck swelled up during this illness. I am also petrified of getting COvid again    now and possibly getting other Cancers in future

  • Hi  and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.

    I am Mike and I help out around our Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade Non Hodgkin’s Lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different I do appreciate the challenges of this journey rather well.

    At the moment this all feels both physically and mentally impossible but you will get there, I totally understand as I was in the exact same position between mid 2013 to late 2014….. but due to my type of NHL and how it was presenting I had a combination of 45 radiotherapy zaps, over 750 hrs of chemo and 2 Allo (donor) Stem Cell Transplants but I turn 68 this Nov and I am doing great. Unlike my incurable NHL that was treated to get me into remission your type of Large B Cell is being treated with an aim to cure….. but it will be rough going but this has to be done to evict this uninvited squatter in your body.

    I do see that you have already joined our dedicated Diffuse Large B-Cell Lymphoma This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    To connect with the group click on the “Bold Link” I have created above then once the group page opens you can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

    I will keep an eye open for you in the group and I will be able to help you out further.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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