Hi I am new to the forum, I think I am looking for support as I am feeling frightened and unsure how I am going to cope or my family are going to cope when I pass. I was diagnosed with Grade 4 brain tumour on the 30th May after surgery took 70-80% of the tumour away. I started Radiotherapy on the 27th June and chemotherapy tablets on the same day I have been coping well with the treatment and am just starting to feel a little tired now. I am on treatment 20 tomorrow with 10 more to go. I had the remainder of my hair clipped off yesterday and am feeling cold and a little shell shocked by the look of me now but also feel strong that I did it in my own time and it was my decision. I had 'good' news a week ago that my cancer cells are strong methylated, i feel this should give me hope that I will live longer than a year(even though no doctor has said I will die in a year this is the statistics i have seen, and I am hoping this means I now have a fighting chance to live longer with the strong methylated cells. as I am writing this I have so much confusion in my head and am crying as every time I think of it I just want to cry. I did decide when I received the news that I would deal with one day at a time and positive mental attitude and I do have it the majority of the time but cracks are starting to show. I have wonderful support all around me, husband, adult children, adult stepchildren, friends etc. but no one knows what I am feeling .
How do other people deal with their mortality staring them in the face?
Hi Christine Mc and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining and posting in our dedicated Glioblastoma multiforme support group, you may also want to look at our Living with incurable cancer - incurable patients only support group (Please join the group but for everyones safety this will then have to be approved by the Macmillan Community Team so will not happen immediately)
These groups are safe places to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To join a group first click on the “Bold Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can then put up your own post when you’re ready by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post. You can also scroll through other members posts and click “Reply” to get involved.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Do get back to me if you need further help navigating the community.
Yes I just seen your post come up on the community feed - well done and I do hope that you can find the support you are looking for.
