Hello, I'm completely new here. I'm a 50 year old Brit living in Italy. I had a full hysterectomy in 2020 for a 'presumed but not confirmed' 13cm fibroid which turned out to be Uterine LMS. My December oncology check up was fine but then in the last few months I've been suffering from heart flutters, dizziness and chest pains. Various checks pointed to a heart problem which doctors have been trying to diagnose but were unable to pinpoint. I've just had my regular full body CT and am waiting to see the oncologist next week and dreading the worst. I'm struggling to sleep and feeling so isolated with having a rare cancer no one knows about. Anyone else out there with LMS?
Hi BritinitalywithLMS and welcome to the Online Community but I am sorry to hear about your diagnoses.
Navigating the cancer journey can be such a stressful and challenging time but getting support from others who are dealing with the ‘exact same' cancer type can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) but au do see that you have already joined and posted in our supportive Soft tissue sarcomas support group. This is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
I used the site search tool 
near the top and put in Uterine Leiomyisarcima and LMS then selected ‘Anywhere’’ and got a few old posts…… have a look.
If you would like to get in touch with our support line from outside of the UK you can contact us 7 days a week 8am-8pm (UK time) on: +44 207 0912230 email or live webchat. This service provide cancer information, practical information, emotional support or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
We also have our Living with cancer outside the UK support group.
Do get back to me if you need further help navigating the community.
I do recall 2 ladies who participated in discussions about their LMS so I’ll tag them so that they will hopefully get a notification and see your post here
Sarah xx
