Appendix tumour

Hi Mini123 and a very warm welcome to the online community which I hope you'll find is an informative and supportive place to be.

The online community is divided up into different support groups so I'm going to suggest that you join and post in the pseudomyxoma peritonei group where you should be able to connect with others who have cancer which has started in the appendix to ask questions, share experiences and get support.

To join just click on the link I've created which will take you there. One you've joined, you can then start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

It would be great if you could pop something about your diagnosis and tests so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi Mini123, I have also been recently diagnosed with appendiceal mucinous adenocarcinoma. I've not really been given any information and it's been like getting blood out of a stone to get the little bit I have.

hi, sorry to hear you have also been diagnosed with this rare cancer. Have you had surgery to remove the appendix. I had mine removed in December, I have colonoscopy coming up soon. Not looking forward to that! 

I went for appendectomy last month but the surgeon was not expecting to see it had spread to the outside of my ovary so he abandoned removal of appendix and took biopsies instead. I previously had CT and Ultrasound in November and have had MRI 3 weeks ago. I have colonoscopy tomorrow. Then it's up to Basingstoke then end of March where I will hopefully get some answers and finally have everything explained to me. Been basically left in the dark as to full diagnosis, prognosis and any treatment plan. That's where I am on this journey, how about you

The waiting game is the hardest. It seems you have had all the important tests and have been referred to Basingstoke which is good. They can put together a treatment plan for you. 

Im having my colonoscopy tomorrow morning too! Just taken the dreaded mix! Now waiting game! 

I have another MRI scan planned for the end of March. Too much information to take in. Always get worried what they will find next! I’m being hopeful. Have to focus on the present. 

I'm not starting on the dreaded mix until 2pm then another litre at 6pm.  Not looking forward to it. Good  luck for  tomorrow 

Thank you, good luck to you too. 

Thanks, just downed 1st glass of moviprep, nowhere near as bad as I was expecting. Probably because I've taken dissolvable vitamins before.. 3 glasses left to go. 

So far manageable!! One sachet left! Lol