Hi I am new member I am a mother of 2 boys 22 and 13 I have had the devastating news yesterday that my partner as myeloma he his waiting for a Mri scan to see if the cancer any where else not sure what to do right now am writing this in tears right now so scared for him.
Hi Bella43 and welcome to the Online Community but so sorry to hear about your partners Myeloma diagnosis.
A blood cancer diagnosis in the family can be such a challenging and stressful time but I do hope you will find the Community a safe place to get support and to ask your questions.
You need to get to understand the concept of an incurable blood cancer like Myeloma.
I was also diagnosed with another type of ‘incurable’ blood cancer over 23 years ago when I was 43 years old and I just had my 67th birthday and am living as good a life as any 67 year old. Yes I have had lots of treatment over the years but I am still here doing great (see my story through the link at the bottom)
When it comes to incurable blood cancers like Myeloma you have to add the words ‘but treatable’…… most incurable blood cancer are seen as chronic health conditions but the positives in blood cancers is there are treatment to deal with it……. unlike other chronic health conditions.
The Community is divided into support groups (discussion rooms) so can I recommend you join and post in our supportive Myeloma support group. This is a safe place to talk to others who may have a similar diagnosis and treatment experience, to ask questions and get support from family members who are navigating the same journey.
If you'd like to connect in with a group click on the Green (Bold) Group link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post
When it comes to the practical and emotional challenges of supporting family you may also benefit from joining our general Family and friends support groups where you will connect with others navigating the same support challenges….. I will add t
The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.
Please do get back to me if you need further help but I do help out across our blood cancer groups so will keep an eye open for you in the Myeloma support group.
