Sadly a friend of mine recently lost her husband from Cancer. Sadly the treatments they tried on him didn’t work. 1 of the treatments that he had was a Stem Cell Transplant. As I also had a Stem Cell Transplant to fight my AML and it worked I am elated and feel so lucky but I also have an element of guilt as it worked for me and not him and it makes me question why?. I know she is happy for me but I don’t know how to talk to her as I worry I’m a reminder.
Hi DisneyDiva and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm so sorry to read that your friend has recently lost her husband after having the same treatment as you. I'm sure she wouldn't want you to feel guilty that you have survived the treatment.
As the online community is divided up into different support groups, I'm going to recommend that you join the acute myeloid leukaemia and stem cell transplants for blood cancer groups as they are great place to ask questions, share experiences and get support. I'm also going to suggest that you join the bereaved family and friends group as I'm sure there will be people there who will understand how you feel.
To join any or all of these groups, just click on the links I've created which will take you straight there. You can then then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi DisneyDiva and a warm welcome to the Community. I am Mike and I help out around our various Blood Cancer groups.
I don’t have AML but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma Stage 4a so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well…… especially as I have had two Allo (donor) Stem Cell Transplants and have experienced the exact same feelings as I have lost some very good friends to their cancer and I am still here.
But when it comes to Stem Cell Transplant there is no guarantees that it will work. During my second SCT the people in the rooms ether side of me did not survive but I did.
I see that my friend latchbrook has given you the link to our stem cell transplants for blood cancer group. Do join and put up your post again and we can carry on this conversation as I can explain how I worked this through my ‘survivor gilt’ ((hugs))
