Good morning everyone.
Scary to be here. I am 32, My OH, 42, was shockingly diagnosed with AML 9/8/22 out of the blue like a lot of the other experiences I am sadly reading here.
Its helpless being on the outside. Can only be there for them, by their side assisting with needs as and when.
He started intensive 7 day chemo and its his last day of this 1st round today 25/8/22. Its been a tough week for him. I cannot express how proud I am of how strong and brave he is being.
I am still working full time and then go into the hospital to spend a few precious evening hours together, we are 10years together and usually inseparable. Hard coming home to an empty house and leaving him in hospital, difficult juggling the rota of visitors. Very hard to stop the negative intrusive thoughts popping in.
Our friends and family have been mostly amazing and supportive. Some finding it very hard to know how to approach us, some are naïve to what is happening.
I have started keeping a journal of thoughts, feelings, milestones, frustrations & happy moments. Finding my self reading non fiction books as a small form of escapism, I try and read till my eyes can read no more. Mostly feeling 'strong' but the crying sessions do come, and they are lurking in my peripheral.
Here to talk if anyone is in the same situation and would like company
Hi SarahC.AML and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that your partner has recently been diagnosed with AML and I know what a tough time this will be for you both.
The online community is divided up into different support groups so I'm going to recommend that you join the AML group, which is a great place to ask questions and share experiences with others with a similar diagnosis, and also the carers only group, which is a safe and supportive place to discuss your worries and emotions with others who have a loved one living with cancer.
To join just click on the link I've created which will take you straight to the group where you can then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your partner's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
This link will take you to a blog which explains how to get the best out of the online community but if you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
New here too, OH received diagnosis of AUL last week, admitted yesterday to start intensive chemo.
He is 53, me 49 2 teenagers together 21 years.
I’m numb, trying to keep going but I just want to run away!
Sat here trying to work, just staring at the screen!
feeling so lost 
Hi Kar1972 and welcome to the online community.
A cancer diagnosis certainly does have that effect on you whether it's you or a loved one who has the diagnosis.
I don't know what AUL is, so can't give you a direct link to a group that covers it, but if you take a look through this list you can choose the appropriate one to join where you'll be able to ask questions and share experiences with others who have the same diagnosis as your other half.
I can give you a link to the carers only group though which is a safe and supportive place to discuss your worries and emotions with others who have a loved one living with cancer.
To join just click on the link I've created which will take you straight to the group where you can then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your other half's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
This link will take you to a blog which explains how to get the best out of the online community but if you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi SarahC.AML and Kar1972. A late welcome from me m. I am Mike and J help out around our various blood cancer group.
Do come over the the Acute myeloid leukaemia group and put a post and introduce yourselves as there are folks (patients and carers) who have walked the walk so can help you further.
