Hi, I've just joined.
I was diagnosed with 2 synchronous tumours last August following the biopsy results from my BSO. 1 was a complete surprise to my Oncology team, let alone me!
So my treatment plan was very swiftly altered to offer me the best outcome.
I had TAH BSO, brachytherapy, omentectomy and chemo.
I have recently completed all treatment and had my follow-up consultation. The CT scan results say I've had a 'complete response to treatment'.
Why do I not sound elated? I also discovered after years of requesting a genetics screening, that I have the BRCA 1 mutation. I lost my sister to endometrial cancer when she was 54yrs. She wasn't screened but I had a feeling that I'd be at risk of developing cancer, hence my insistence. So now I'm waiting to be contacted by the Genetics team.
I'm not keen to have any more surgery until I've had a chance to reflect on my manic past year. I don't know if I need counselling or just time to process what I've been through.
This is my first post on here!
Hi Tartanlass and a warm welcome to the Online Community (from Inverness) although I am so sorry to hear about your diagnosis and the challenges your family have had. With the passing of your sister and your difficulty in getting genetic testing it just added to the stress of you journey but lets look for you to get clear answers soon.
The New to Community is like our reception desk where you can be signpost to our various cancer support groups and other services so can I recommend that you consider joining our supportive Womb (uterus) cancer group. This will be a safe place to talk to others who may have a similar diagnosis (treatment) experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Cancer Nurse Team in our Ask an Expert section helpful but do allow a few working days for a reply.
Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community.
All the very best.
Pleased that you find this helpful.
