Hi. In January 2921 I suffered a spinal compression injury. Ie my bone marrow cancer spread to my spine and the cancer was compressing the nerves in my spine which gave me Incontinence for bowels and urine. I also got a temporary paralysis to legs and arms. Luckily hospital put me on steroids to get the swelling on tumours on sine down and then o had radiotherapy which neutralised the cells with cancer in and I then got feeling / movement back in legs and arms. I still have a semi Incontinence. I was bed ridden for three months then I had a bone marrow transplant last June 2021 and have suffered some graft versus host disease. I am about a year on from further spinal compression and I managed to Satan’s and walk a limited amount last may 2021 but I find nearly a year on my legs are still very stiff especially on thigh area and calf area and with stretching and some exercise my situation does not change much. Has anyone been through a spinal compression and suffered stiff legs afterwards? Did it take time to resolve? Did you have to do anything special to improve situation? I am 55 years old and have been through a lot of treatment in that I also ended up in intensive care and reacted badly to an antibiotic, and had a grade 3 bed sore as well as gvhd. In this particular post it is getting the strength
back in my legs and eliminating the stiffness after spinal compression so anyone who has been through a spinal compression I would be glad to hear your experiences. Many thanks.
Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read about your spinal compression and it's understandable that you'd like to talk to others who have been through this.
As you know the community is divided up into different support groups and I can see that you've already joined the bone cancer and spinal cord tumour groups which are great places to ask your question, share experiences and get support from others in a similar position.
When you feel ready to post, in either or both groups, clicking on the links in this message is a quick way of getting to the groups. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi and welcome to the Online Community although I am so sorry to hear about the journey you have been on but I do hope you find the community a safe place to get support and ask your questions.
I see you have joined our Spinal cord tumours group. This will be a safe place to talk to others who may have a similar post treatment challenges, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
I actually have had two Allo (donor) Stem Cell Transplants for my type of blood cancer so understand the post SCT recovery very well. My notability was badly effected so had to Lear to walk again following my decision d SCT with pain issues for a good two years (hit my community name to see my story)
You may want to post in our dedicated Stem cell transplant group as well as the post SCT recovery is rather unique.
Always around if you need further help in navigating the community.
All the very best
Hi again…… so it took 4 months to get out of the wheelchair onto walking sticks and walking unaided……. then a good 18 months to rebuild my muscle mass and over come the nerve damage where my mass was in my neck.
I had massive amounts of stiffness in my legs and yes to Tingling and numb legs….. again this was part of the two year re I try but even now, 6 years out from my second SCT the less I do the more stiff I get.
For the past few years my aim is to do 10000 steps a day, every day….. but I could never run, but walking at a good speed apart from uphill 
You may find this thread in the SCT group helpful Life after a SCT - A Survivor's Guide
