Neuroendocrine cancer

  1. I'm supporting someone who has just found out she has aggressive stage 4 cancer and I know she needs to get as much support as she can cos it's terminal so just wondering how this forum can help both her and me 

  • Hi  and a very warm welcome to the Online Community although I am so sorry to hear about your family member/friends diagnosis. This is such a challenging and stressful time for but I do hope you find the community a safe place to get support and ask your questions.

    The New to Community is like our reception desk where we can signpost you and her to our various cancer specific support groups and other services so can I recommend that in the first instant you consider joining our supportive Neuroendocrine tumours group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions, get support and talk with others who are supporting family and friends on their journey.

    If you'd like to connect in with a group, you do need to join the group. Click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New  (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Chat’ or ‘Start a Discussion in New here, say hello’ and you are ready to go.

    You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    We also have our Living with incurable cancer - incurable patients only group, unfortunately as you are not the one with the diagnosis you would not be able to join and interact in this group. But if your family member/friend want to join the community she can.

    When it comes to the practical challenges of supporting someone on their cancer journey you may benefit from joining our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service will provide both you and her cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

    We also have our Telephone Buddy Service where she can be matched with someone who understands what she is going through, and they'll give her a weekly call.

    Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.

    Always around if you need further help in navigating the community.

    All the very best ((hugs))

    Mike - Thehighlander

    It always seems impossible until its done - Nelson Mandela

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