So last week my right breast started to hurt. I didn't think much of it as sometimes that happens around my cycle. But by Friday it was really painful, so called the doctor. He gave me antibiotics, but told me I had to go in as he was concerned over my description of the pain as he said it did not sound normal.
Monday I went into the doctors. She was lovely, but obviously concerned. My nipple is 5 times larger on one side and there is an obviously lump My right breast also feels different to my left. She said it could be an infection, however, it is not presenting like an infection, I have no temperature, I am not in any risk group for infection and since the antibiotics it has got worse not better. So she has referred me for an urgent referral to the cancer clinic at the hospital.
Reading other peoples comments in places it seems there could be a little bit of a wait for this I have been told I should be seen within two weeks, so 19th October. If I dont hear anything I am to call the doctor back. Doing some research on google (I know its the worst place to get information), it presents most like IBC but could be pagets disease. A close friend of mine died two years ago after an 8yr battle with breast cancer, so you can imagine I am pretty scared she was only 35. I have two people that I care for and I am wondering how on earth I will continue to do this if the worst is diagnosed. And I have no support. No friends or family near me. Which is now highlighted because I am so worried about this. he
I know that both pagets and IBC are extremely rare forms of BC. So I could be worried for nothing. I think the worst is definately not knowing. I feel a bit of a fraud messaging here when I haven't had a diagnoses. But you will all know what I am currently going through. The dreaded wait. And its also so painful. If I remove my bra its even worse so I end up keeping it on so the boob doesnt move. But it still hurts everytime the fabric rubs against it.
Hi and welcome to the Online Community.
I am so sorry to read about your ongoing concerns but I hope you will find the support available in the community helpful at this difficult and challenging time.
Talking with others who are or have walked the same path will help you navigate this unwanted journey.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start by joining our supportive Breast cancer group as this will be a good place for you to connect with other folks who may be on the same cancer treatment pathway.
Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.
You can then introduce yourself by putting up a post by clicking on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).
You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, financial guidance or just a listening ear.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
All the very best ((hugs))
Hi
Totally get where you are coming from. You feel the world is collapsing on you and your losing grip from under your feet! I am also waiting on diagnosis. And already I cannot eat, sleep, think, function and keep crying too.
All you can do is be kind to yourself, do some breathing exercises or learn relaxation techniques...I do this so my mind won't wander off to worst case scenarios...its so hard and I wish I could give you the biggest hug. Its especially hard when with each movement you feel pain. I bought an exercise bike so each time I feel negative, I go and pedal my heart out. Night time is the worst...I wake up, staring at the ceiling like I am going insane. It so so hard, I feel for you.
Remember each one is different and we walk our paths differently with BC (should it come to that even). Take each day as it comes, bring your mind to the present is all you can do. Easier said than done.
Keep positive if you can for the next two weeks....do chase or ask your GP to chase your referral. Reach out via some helplines if you need to talk to someone urgently even if you got no one close.
Sending you positive vibes....Good luck! My D Day is tomorrow....I am petrified.
C x
Hi,
I'm new here and I just wanted to say I can relate to the worry and wait for some answers, and also with the experience of having watched a loved one with cancer. It does magnify things in my experience, and so I just wanted to say hang on in there. I hope you get the answers you are needing soon.
Best wishes
Hi Claud272, thank you so much for your reply. I will be thinking of you today, I hope you get good news. At least the wait is finally over and once today is out the way you can plan ahead and I think once you know you can deal with it better than the not knowing. I have been told the majority that get referred turn out to be something else. Here is hoping for both of us. No one wants to go through this journey I still have not heard anything. Pain has subsided a little. I am hoping that means good news and the antibiotics are working for me and maybe I might not need to worry. But been told even if infection, I have to be checked, as sometimes cancer can cause an infection, if it blocks the ducts. So I need to rule it out whether it feels better or not. Better to be safe than sorry. Anyway all the best for today I hope you have good news!!! xx
Hi Justmeherenow, thankyou for your reply. Its awful isn't it knowing what friends/family went through and that it may now happen to you. But I have to stay positive.Yes my friend died of BC. But she was diagnosed 10yrs ago. Treatment has changed since then and statistics are a lot better than they were even then. She also had other factors that meant it was aggressive. No two people are the same and many many many people get through this journey. My sister had another form of cancer and she is now 10 years in remission. I think the worst thing I did was googling. I am so glad I came here and people made me realise any statistics on google are out dated. The only people that can tell you the here and now, is your medical team and people that are currently going through it.
Whatever cancer throws your way, we’re right there with you.
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