Hello everyone! I just joined the group, hoping to connect with anyone with a similar diagnosis.
I was diagnosed over a month ago after a four month long process figuring out a growth ontop of my sternoclavicular joint with my GP during the lockdown. The “imperfect” biopsy came back as highly likely follicular lymphoma, and I was refered to an oncologist. A PET scan revealed a few lesions on my spine, hip and ribs. There are no other cancerous lymph nodes except for the one wrapped around the clavicle. A hip biopsy revealed that there is no cancer in the bone marrow and I am now waiting for a biopsy of one of the spinal lesions to see if that is indeed FL.
I am at a major cancer centre in a big city, and my oncologist team keeps telling me that whatever I have appears to be slow growing and that I should try not to stress. (Ha!)
The wait has been excruciating and Dr Google comes up with only one abstract on this “rare” presentation of FL.
Is anyone out there with a similar diagnosis?
Hi and welcome to the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our Lymphoma groups. So I will put up a reply in your post in the Follicular lymphoma group.
