Hi everyone
So I had Hodgkin's Lymphoma 34 years ago. I was 3B had 9 months of chemo and been in remission ever since. Now have another lump/sweelling in neck and have ultrasound Thursday. Not sure about biopsy.. Im just feeling so lonely because I cant talk to my loved ones about my fears because I now how much it will make them be afraid! I cant do that too them , cant say anything til I know what is real and what is fear? Im already disabled have been since I had lympma. I am widow now so on my own. Scared I wont be able to go on living independenetly. basically my mind is racing left right and centre with various pictures of what the future could be. Anone relate?
Hi and welcome to the the Community although always sorry to see folks joining us. I am Mike and I help out around our Lymphoma groups.
I don’t have HL but was diagnosed way back in 1999 with a rare incurable but treatable type of skin NHL Stage 4a so although my Lymphoma ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix.
Over my years I have had many relapses but the developments in treatments have resulted in there always being the next best tool to treat…… but from my experience, until you are told you have relapsed, you haven’t…. as this has happened a few times to me as well.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start of by joining our supportive Hodgkin lymphoma group as this will be a good place for you to connect with other folks who have walked the sane pathway.
Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.
You can then introduce yourself by putting up a post by clicking on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).
You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'.
I will keep an eye open for you in the HL group ((hugs))
