Hi, I have Myeloma and am about 2 years into remission after a first course of treatment. I have been advised that even after both vaccine doses I am still only about 40% protected and should limit my exposure to people and places. I would like to join a new U3A group but they expect to meet rather than zoom. Am I destined to be restricted forever from such activities?
Does anyone else feel the same concern or have a view on this situation?
Hi and welcome to the Online Community but so sorry to hear about your Myeloma diagnosis.
I have a different type of blood cancer and yes, there is still a need to be very carful when coming into infection risks especially Covid.
My clinical team have advised me to assume that I have no protection agains Covid and to risk assess everything I do and who I see…… but I have been doing this for the past 5 years after my second Stem Cell Transplant as this has left me with a weak immune system….. but we are still able to live a full and happy life.
My team told me that my main protection will come for the development of a more targeted booster and the ever increasing uptake of the vaccine across the population.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start of by joining our supportive Myeloma group as this will be a good place to connect with folks who may be on the same cancer treatment pathway.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.
We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best.
