I'm here out of curiosity. I'm 5 years into Multiple Myeloma. It's an incurable blood cancer, technically terminal, but I plan on sticking around for awhile. I'm in a strange place, along with the rest of you. Anyway, I'm curious to see and learn how others deal with this less than desirable condition.
Hi and welcome to the Online Community but so sorry to hear about your Myeloma diagnosis.
An incurable blood cancer diagnosis can be very challenging but talking with others who are walking the same type of cancer journey (I have an incurable Lymphoma) will help you navigate this difficult time.
The Community has many cancer specific support groups so can I recommend you join our supportive Myeloma group as this will be a good place to connect with folks on the same cancer treatment pathway.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.
We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
All the very best.
