Lobular breast cancer

Hi Joanig and welcome to the Online Community but so sorry to hear about your diagnosis.

A cancer diagnosis can be very challenging but talking with others who are walking the same type of cancer journey will help you navigate this difficult time.

The Community has many cancer specific support groups and I see you have joined our supportive Breast cancer group as this will be a good place to connect with folks on the same cancer treatment pathway.

To go to the group just click on the link above then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'. 

It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.

We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.

To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section. 

All the very best ((hugs))

Hello I was diagnosed on Friday and am on the same path.  Just waiting for my MRI appointment to come through.   In my case I am a widow without children, the family go to person and main carer for my elderly Mom and disabled brother, so have little support.  Also slightly lost but with a diary full of appointments that need rescheduling I sat down and drew up a plan to deal with the practicalities such as care for my cat and do the things I've put off like lose weight and declutter.  Only small things but I do feel as if it has given me some element of control 

Hi 

I have got my MRI appointment tomorrow  then I guess it will all begin 

Yes I have been thinking about sorting a folder out with all bits that may need dealing with

It's a good to have some sort of plan in place just so your thrown in to panic mode

You can explain to the breast nurse they you will need some outside support while you are recovering. 

Can a neighbour help with the cat? 

I do have a partner but he is very used to me doing all household stuff  although I prefer I didn't, I think he will find it hard when I can't do all those things ,I  do have a daughter and a son although they also have their family commitments. 

It just so hard to know how  cope  its going to hard especially when you are so use to being in control and just getting on with life and then it's all the emotional side.

I definitely don't like the feeling of the unknown 

It is so difficult to take it all in.  I went through it with my late husband who had myeloma and my Mom just 6 months ago who had Squamous Cell Carcinoma.   But even then as you say it is the unknown and the letting go.  I keep telling myself no point worrying about things you can't change - doesn't help late at night though.  They said surgery was most likely same day in and out but as on my own will need to stay overnight so thinking if I ask the neighbour just to pop in and check on the cat should be okay.    You sound like me - don't want to impose on others but as you and I are at exactly the same stage in this process hopefully we can support each other but I am sure your family will step up.  Hopefully once the ball gets rolling it will be easier to deal with.   Get tomorrow over with and that is one thing out the way.  

Hello

Oh you have been through a lot with your family and very tough having to now go through this yourself.

My sleep last week was great even the night before getting my diagnosis but Friday and Saturday rubbish, then last night good,fingers crossed it stays that way and I hope yours will improve. 

Long afternoon having the MRI, the  cannula leaked so my blood and the dye everywhere!!!  

Most definitely we can support each other.

Have you managed to speak to your neighbour about the cat.

I went and got some extra keys cut yesterday so I can give one to my son and a close friend, as you never know if I need any help at any point 

A good nights sleep is so important so as you say fingers crossed.  My husband used to say I could sleep through a nuclear war but not it seems a hungry cat at 3am!    Shame the MRI didn't go too smoothly for you, they aren't pleasant at the best of times.  Still waiting for my appointment to come through - had hoped to have heard today.  Once I have that and am basically on the starters block I can sort things out so will wait until then to speak to my neighbour.   Pretty sure it won't be a problem - she has found Jess asleep on her bed more than once.   Good idea about the keys I hadn't thought of that.  All I have done so far is stock up on some books to read!    

Hello 

Sorry haven't been in touch was just waiting on my results and I thought I would get a date when the treatment would start but no things have changed and I have now got to have another ultrasound, was meant to be tomorrow but that got cancelled so have to wait till Tuesday, just been struggling with that news and I am worrying what is happening 

Have you got your MRI appointment?

How are you feeling? Has your sleep got any better?

I took my partner to Grand prix last weekend, that was a very hot day but I didn't burn like so many others there. 

I am out with friends tonight for a meal .

I am struggling with the pain ,do you get much pain, I tried painkillers but they don't work. I am finding it hard to stay positive at the moment, how are you feeling? 

hi 

sorry about your diagnosis

just  been diagnosed too lobular cancer 18/06

booked for surgery but not happy to have all my lymph nodes out in armpit . i wish i can get more advice on the implications .