New diagnosis trying to find the primary

Hi Jasperkipper

I am really sorry to hear about the terrible news you have received, just remember there may be treatment available for you even at this stage so don't give up hope and always think positive. I know that's easier said than done but how I have looked at mine is, it's there I can't do anything about I am in the experts hands and they are excellent and so kind and understanding. Your feelings must be all over the place not knowing the primary site but keep your chin up and think positive. 

I was diagnosed in March with NSLC and SCLC and it didn't take long to see the oncologist if I remember rightly mine was less than a week due to the nature of cancer. There's not much treatment for my type and life limiting but I try and keep life as normal as possible which for me is working because I forget I have the nasty C word sometimes.

I hope you get the answer to help you deal with it a bit better. Keep smiling and live life to the full.

Grumpynana

Sorry to hear of your diagnosis, I have recently been diagnosed with lung cancer and metastasis in my spine. The waiting is the worst part but take strength from those around you. I try to stay positive and fill my days so I’m not dwelling on it. Your lung cancer nurse is always there for support. Be kind to yourself and don’t think to far ahead, small steps to your treatment plan. Sending best wishes. You are not alone x

Thank you so much and best wishes to you too x

Thank you I will take your words on board and make sure I fill my days x

Hi  and a sorry welcome to the Online Community. I am especially sorry to hear about your cancer diagnosis.

The waiting for appointments is hard work, I have been on my journey for over 22 years now and honestly there is no set time for this to happen but it most likely won’t be as quick as you would want.

A cancer diagnosis can be very challenging but talking with others who are walking the same type of cancer journey . The community is made up of various support groups so do look through our list of Cancer specific groups where you can talk with others who have walked or are walking this cancer journey.

To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.

You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'. 

It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.

We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.

To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section. 

All the very best.

Thank you