Hi We live in Portugal and my partner was diagnosed 18 months ago with AML, he has been taking imatinib, then this week after some blood results we were told the tablet is no longer working and he has to have another one, which as yet we are unsure of the name. In portugal they have to put everything before a board who will then discuss your case and decide whether or not you can have the tablets you need. Well the board sat today but didnt discuss the case and we were told to call back next week.
To be honest we havent had the best of treatment since diagnosed and because we are not fluent in Portuguese its very difficult and no support groups to help.
My partner has now decided that maybe we should sell up and move back to the UK as he feels that he is not getting the level of care required here.
I would like to know if anyone has been in a similar situation, or has also been on medication for lukemia and its now not working how did you go forward. thank you
Hi and welcome to the a community but sorry to hear about the challenges you are facing with regards to your husbands treatment.
I see you put a post up on the Acute myeloid leukaemia group so I will put up a full reply on that post.
