Hello,
My has recently been diagnosed with Mesothelioma and had a chest drain fitted. He was accepted on a drugs trial for immunotherapy treatment and recently had his first treatment. Unfortunately his liver enzymes went dangerously high and we have now been told by his oncologist that he will not be able to continue with the immunotherapy due to this. They are now deciding on other options, chemotherapy being one.
I was wondering if seeing a specialist oncologist privately would give us anymore options? Does anyone have any experience of this, any recommendations would be great
Hi Cashcurry and welcome to the Macmillan Online Community but sorry that you had to find us and especially sorry to hear about your diagnosis.
A cancer diagnosis can be challenging in so many ways but talking with others who are walking the same type of cancer journey can help you navigate this difficult time, I have a different cancer but I see you have joined our supportive Mesothelioma group, this will be a good place to connect with patients and families navigating the same type of cancer journey.
To go to the group just click on the link above then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service can give lots of cancer information, support, financial guidance or just a listening ear. We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
All the very best
