Evening all. New to community and not sure how to navigate forums? My IT skills are pretty naff so any advice welcome. First diagnosed with bowel cancer in 2015, followed by long stretch of chemo. Recent unexpected bombshell dropped about 6 weeks ago now showing rapid metastatic spread to liver and lung. Prognosis poor without treatment, but chemo commencing tomorrow and really quite anxious about it despite having had it before. Trying to hold my nerve but feeling wobbly. Anybody else had experiences with Campto and 5Fu combinations of chemo and this side effect called acute cholinergic reaction? Got no idea if I am on the right page or forum...directions most welcome.
Hi and warm welcome to the Macmillan Online Community but sorry that you had to find us and especially sorry to hear about your diagnosis.
A cancer diagnosis like this can be challenging in so many ways but talking with others who are walking the same type of cancer journey can help you navigate this difficult time.
The Community is organised into support groups so can I recommend you join our supportive:
Living with incurable cancer - incurable patients only
groups as these will be a good places to connect with patients and families navigating the same type of cancer journey.
To join a group just click on the link(s) above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service can give lots of information, support, financial guidance or just a listening ear. We also have our Ask an Expert section, but do allow two working days for replies from our expert team.
If you need more help just give me a shout.
((hugs))
