Hi, I have been diagnosed with a brain tumour 6 weeks ago. Sadly still waiting for a treatment plan... Feeling frustrated and impatient but hopefully I will have a treatment plan next week. I am just over 40, with a very caring husband and 2 fabulous kids. (12yo and 10yo). They are my everything. I am also an intensive care nurse, with some medical knowledge....However, I am scared and worried like probably most of you...
Hi and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your diagnosis.
A cancer diagnosis can be challenging in so many ways but talking with others who are walking the same type of cancer treatment journey will help you navigate this difficult time.
The Community is organised into cancer specific support groups so can I recommend you join our supportive Brain tumours group as this will be a good place to connect with patients and families navigating the same type of cancer treatment journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
You might like to have a look at this information from Macmillan on understanding childrens' reactions and also this on talking to children when an adult has cancer. You can also download, or order a paper copy, of this booklet.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service can give lots of information, support, financial guidance or just a listening ear. We also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
((hugs))
