hello. I was diagnosed with a t4 tumour, after a colenectomy, installation of a stoma on 3 January had no idea of any of it. Stoma failed, second operation 20 jan. started chemotherapy last week and have been very very sick, seems I have an intolerance. Found out yesterday as well as spreading to a lymph node it has gone into blood cells, mortality 5 years, likely to return within 2. Making decisions about continuing, or not, with chemo. Oncologist has said to try reduced dose. Today’s job list find out about my pension, I’m 53 in 2 weeks.
Hi Ags68 and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your diagnosis and the challenges you are having to deal with. I also have a incurable type of blood cancers with no clock on it so tend to not dwell on it that much.
You may find talking with others who are walking the same type of cancer journey will help you navigate this challenging time.
The Community is organised into support groups so can I first highlight our supportive Living with incurable cancer - incurable patients only group, this will be a good place to connect with folks navigating the same type of Lymphoma journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
This is a list is for our Cancer specific Groups and the second list is for our various other Cancer experience groups.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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