New to Group

Hi Krazychrissy. So sorry you’ve found your way here. The Soft Tissue Sarcoma Forum would be a good place to introduce yourself, there are a number of people there who have been diagnosed with leiomyosarcoma . I think support is a very fluid concept during the cancer journey and I have found the best bet is to take control of the process oneself and contact your designated nurses with any worries or concerns. Sarcomas are, as you say, very rare and finding people who have experience of them is difficult. Building a support structure of family, friends and online has helped me enormously, plus finding a local support group (for when lockdown finishes). 

Good luck and let me know if I can help in any way. 

Thank Shackleton - I will make my way to this group