Hello
I've recently been diagnosed with CML (3 months ago) and am trying to find my way through the shock and utter disbelief that I have a blood cancer. My meds so far have only worked up to a certain point and Im hopeful that a TKI can be found soon which I can tolerate.
Somedays I feel like I am living in a parallel universe where this is happening to someone else and not me - will this ever get better? Will I stop obsessing about this in the near future? It all feels so very scary right now.
Trying to be oh so positive for my family and friends but struggling a little when Im on my own.
Hi and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your CML diagnosis.
A blood cancer diagnosis brings many questions, much confusion and lots of stress. I know as I was diagnosed with a rare skin Lymphoma way back in 1999 but zi am still around boing great.
You will find talking with others who are walking the same type of journey will help you navigate this challenging time.
The Community is organised into dedicated support groups so can I recommend you join our supportive Chronic myeloid leukaemia group, this will be a good place to connect with patients and families navigating the same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
((hugs))
