Facing this mammoth decision after just 10 weeks of treatment with weekly chemotherapy and drug support.
Collection date is early March.
I feel overwhelmed and yet was over the moon that my blood results were so very good - with paraprotein disappeared and light chain down to 70 from nearly 500.
This is my decision alone. And I feel very alone.
I've come to this site to make contact with people who have been through such a treatment that, on paper, sounds horrendous.
Is anyone there please willing to share your experience?
Hi and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and especially sorry to hear about your diagnosis and ongoing treatments.
A cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups I see you have joined our supportive Myeloma group, but you may also want join our dedicated Stem cell transplant group, this will be a good place to connect with others navigating the same type of treatment journey. I understand your challenges as I have been through two Allo (donor) Stem Cell Transplant for my rare NHL, it’s a challenging journey but talking with others can help.
To go to the groups just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. Then you can introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones) you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
All the very best
