Scared newbie

FormerMember
FormerMember
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Hi I'm Lou, I have 3 beautiful grown daughters. Lizzy, my middle one, has just been diagnosed with Acute myeloid Leukaemia. She also has sepsis at the moment. She is in hospital 160 miles away and I can't do anything. She has 4 gorgeous children. I just need some help x thank you

  • Hi and welcome to the online community

    I'm very sorry to read that your daughter Lizzy has just been diagnosed with acute myeloid leukaemia (AML) and I know what a difficult time this will be for the whole family.

    As the community is divided up into groups I'm going to recommend a couple for you to think about joining. The first is the acute myeloid leukaemia group, which is a great place to ask questions and share experiences with others who have AML, and the second is the family and friends group which is a safe and supportive place to discuss your worries with others who have a loved one living with cancer.

    To join either or both of these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

    When you feel up to it, it would be really useful if you could pop something about your daughter's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    If you need any help finding your way around the community just give me a shout.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi  and a warm welcome to the Macmillan Online Community, a Community that no one really plans to see themselves joining, and so sorry to hear about your daughters AML diagnosis.

    Having lived with another type of blood cancer for over 21 years I know the treatment challenges involved in this and fully appreciate the challenges the family face supporting us during treatment..... now made worse by COVID.

    A blood cancer diagnosis brings a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helps a lot.

    The Community is organised into support groups you may want to have a look at our supportive Acute myeloid  leukaemia group as this is the place where you will connect with others walking the treatment journey both as a patient or family.

    Follow the above link then choose ‘click to join' or ‘join’ when the page opens.

    You can then introduce yourself, post questions or just  join in with existing discussions by clicking on 'reply'. 

    You may also find our Carers only and Family and friends groups a great benefit as you will connect with others supporting family through their cancer journey.

    Its always good to talk and the Macmillan Support Services provides lots of information, support or just a listing ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available.

    You can use other methods to contact our Support Services (LINK) and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Our Online Information and Support Section  is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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