Introduction

FormerMember
FormerMember
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  • 28 subscribers
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Hello, I'm Michelle I'm 43yrs have been diagnosed with light chain mgus 3 yrs ago, i'm aware that most doctors say there are no symptoms with mgus, but that's what sent me to the doctors in the first place many different symptoms, achy all over itchy skin kept getting colds and urine infections all the time felt like i had the flu all the time, and the worst symptom of them all for me was hot flushes my face felt like it was on fire. I still have these symptoms they come and go, but for the past several months i have noticed my blood has become thinner a lot thinner and takes much longer to clot, plus i bruise way more easily my cuts take longer to heal, although this could be my diabetes. With the Corona virus i cannot get my blood tested so have to wait for my specialist app in July and hope app is not cancelled. Any way I hope everyone is safe at home and not going too stir crazy, I find meditation helps, well that's me bye bye for now x     

  • Hi  Michelle  and welcome to the Online community, although I am sorry to see you finding us and so sorry to hear about you diagnosis and your ongoing issues.

    Talking with people who are on the same journey can help a lot so can I highlight our very supportive Myeloma Group as this is the best group that covers your type of condition.

    Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment. 

    Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.

    Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

    ((hugs)) from a distance.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Hi Thehighlander, 

                                 Thanks for the warm welcome and advice, WOW! you have gone through a lot, puts mine into perspective, i am sorry for all your health troubles. I love your survival slogans there ace, hope too talk again soon X

  • Just one journey amongst many.

    Do join the Myeloma Group as you will meet up with my friend who I see you talked with a good number of months back.

    ((hugs)) from more then 2m Joy

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge