Multiple myeloma- keeping us apart.

FormerMember
FormerMember
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Over the last year my father in law has developed multiple myeloma. Now he needs continuous help from my partner, who has moved in with him, he is elderly & cannot cope. His home is 1hr on the car ferry & 4hrs drive away from our home.He is very poorly & although he has 4 visits a day from a carer this is not enough.

I try to support my partner - this is difficult with the distances.

Over the last month my own Father has died, & I have lost my mother too.

This cancer has left my partner having to deal with the care single handedly- unable to get a break to come here to visit , & I am left trying to deal with a double bereavement on my own.

My own health is not good- & is deteriorating.

I guess I feel utterly isolated & hopeless. I cant even afford to visit my partner to offer any comfort.

This cancer takes everything.

  • FormerMember
    FormerMember

    Dear I am so sorry to hear about the situation you are all in, the stress levels must be through the roof. May I ask if your father in law is receiving active treatment for his myeloma ? ie velcade etc. It sounds as though you are getting some help but given his physical condition this does not seem enough. Did your father in law have medical problems prior to myeloma or are his problems as a direct result of the myeloma. I have a extremely rare form of myeloma but have a good understanding of what problems the disease can bring and it varies so much between individuals. I’m happy to answer any questions you have.

  • Hi and welcome to the online community although I'm very sorry that you've had to find us.

    It sounds like you have an awful lot to cope with at the moment so it's no wonder that you're feeling isolated. However, please don't feel that you're hopeless. We all need support from time to time.

    This community is divided into groups where you can share experiences and get support and I'm going to suggest a couple that you might be interested in joining. The first is the myeloma group where you can talk to others who either have this form of cancer or are supporting others who are dealing with it and the second is the family and friends group where you can share your worries and get support from others who will understand how you feel.

    To join these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    I'm glad you've reached out to this community and I hope that we're able to support you.

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