Oesophagus cancer, can not operate.

FormerMember
FormerMember
  • 29 replies
  • 23 subscribers
  • 14594 views

Attended my first consultant meeting yesterday with my Macmillan nurse, I did not expect all good news but I did expect some hope after only 3 weeks of the oesophagus cancer being found, I was told large lymph nodes surrounded by large tumour with spread to the liver, I was told it can not be operated on !! I can have a stent put in when the time is right for me but that appears to be it, so what now ? The hardest bit for me is facing this alone with no family or friends to give much needed support, mentally I am worn out confused, I can not fight this cancer if it is not operable,

All I can do it seems is get my affairs in order and say goodbye, sorry I was not able to give this sick evil oesophagus cancer afight, no options after after only 3 weeks of knowing.

I feel anger towards my GP who just kept giving me ranitadine and inhalers saying it was COPD despite blood test saying there was a problem for over twelve months.

Alan ( chuddy )

  • FormerMember
    FormerMember

    I’m sorry to read your post Alan, even more so that you are going through this alone. This is a great group, I hope it will help you feel not so alone. Stu. 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Stu, for replying to my post, I hope joining your group will give me some much needed support / guidance, the last 3weeks have been a nightmare I have gone from being happy walking my dogs over the Fields enjoying life not knowing I had oesophagus cancer to being told it's to far gone to operate, what hurts I didn't get the chance to fight this evil cancer, it as beaten me before I had a chance, so what happens now.

  • FormerMember
    FormerMember in reply to FormerMember

    Im sorry but I don’t have the answers for you chuddy, if it’s ok to call you that? but I feel it’s important to let you know you aren’t totally alone. I feel quite helpless but at least consider me as a friend to talk to. The Macmillan guys will give you the advice & help but I’m just someone that cares mate. 

  • FormerMember
    FormerMember in reply to FormerMember

    Someone that cares - thank you, you have put tears rolling down my face to hear the words someone cares is everything to me right now. Sorry I cannot see my eyes are full.

    Thank you and please call me Alan

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Alan, I am struggling with the fact you are having to go through it all alone. I’m sure your dogs are comforting company. But I also know it’s nice to have a friend that talks back. I will be at the other end of this message for you whenever I can, even if you just want a rant or vent some anger & frustration. I can’t imagine what you are feeling but, I’m here. Stu. 

  • FormerMember
    FormerMember in reply to FormerMember

    If it was not for my dogs I don't think I could have got through the last 3 weeks, they have given routine, love and companionship they gave me the strength to fight, they take me amongst nature every morning on our walks across the fields, they are my life.

    Now I know I have no hope of recovery I struggle with the pain of leaving them to a life with strangers, with they be safe ?

  • Hi Alan and a very warm welcome to the online community

    I'm very sorry to hear that you have been told that your oesophagus cancer is inoperable and that it has spread to your liver. I cannot begin to imagine the range of emotions that you must be going through as, although I had cancer, mine was not the same as yours.

    I can see that you've already had some great support from Sunday sleeper and I'm sure you'll find many others willing to support you too.

    The community is divided into groups where people can share their experiences and provide support. There are cancer specific groups and also cancer experience groups. Within the former you might like to join the oesophagus cancer and secondary liver cancer groups and in the latter we have an animals are family too group.

    To join any or all of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then introduce yourself and post a question after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Sending a supportive (((hug)))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you, thank you, for your very helpful understanding reply, the suggestion I may want to join certain groups with one fetching tears to my eyes was animals are family too it is my dogs that are causing me the most anxiety they are rescue dogs and I fear for their futures - will they get a kind loving home with someone who really cares.

    Thank you again I really do appreciate all the help, guidance you have given I will see to my profile later today, at the moment I am trying to get a GP appointment to see if he will give me something to control this acid reflux and hopefully help me get some sleep, I can't wait up to two weeks for this appointment, so I will have to go against my nature and be pushy. Fingers crossed.

    Alan

  • Hi again Alan

    I'm pleased that you found my suggestions helpful Slight smile

    If you haven't already rung your surgery for an appointment then I'd certainly play the cancer card in trying to get an immediate appointment. That usually does the trick in getting to see your GP sooner.

    You could also speak to your cancer nurse specialist (CNS) at the hospital that's looking after you as s/he should be able to help you with medication.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    I have sent them an email explaining what the results was at my consultant meeting yesterday, explaining my anxiety and acid reflux informing them of my short notice pet- CT scan tomorrow and the need to be relaxed after a night's sleep that I am not getting to take the scan with the radiation injection.

    If I have not heard by one ish I will jump the car and go down to them.

    My cancer nurse and hospital is nearly a hours drive from here, so hopefully the GP comes good.