I'm new to this group. I am the wife of a man who has been diagnosed with Myeloma. He has started chemotherapy (3 weeks) along with various other medications. I am, at this moment, waiting for him in the hospital while he has a bone scan to see if it is in his bones. He also has to have a heart mri and kidney biopsy as they suspect amyloids. He is very positive which is good but I am really struggling. I feel I am watching him on a downward spiral every day and I don't know if this is the condition or the medication. Has anyone had experience of this?? I am desperately worried. We feel like we have been left in limbo land with no definite answers , etc. Please help....
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your husbands/partners diagnosis.
I have lived with a rare type of blood cancer for 20 years now diagnosis and it does bring a lot of stress, confusion and questions but talking with people who are on the same journey can help a lot.
I see that you have joined our very supportive Myeloma group and I am sure they will help with your concerns as they know exactly what you are going through at the moment.
As I was the person with the cancer my experience of supporting someone is very limited, although my wife has been amazing over my 20 years. You may also find our As I was the person with the cancer my experience of supporting someone is very limited, although my wife has been amazing over my 20 years. You may also find our Carers Only and Friends and Family groups to be good places where you can connect with others support family through their cancer journey but more importantly the carers care for each other.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
All the very best.
