I'm almost 60 and live in the mountains of northern california, I thought i had the flu as i was having problems breathing so I went to the ER, they did a CT Scan back in Feb 2017 they told me i had a mass tumor on the outside of my right lung, my primary set me up with a specialist at a cancer center I was told i had a rare form of cancer but they didn't know what kind but it was benign, I had a biopsy done in march the following month, I was told I had spindle cell neoplasm, I have 4 Dr's and no one has actually explained spindle cell to me except it's very rare and that it is not connected to the mass on my lung, I was recently told i had two different types of rare cancer, I am 50 miles away from the closest cancer center round trip over 100 miles, they want to do 5 days a week possibly 10 to 12 weeks of a chemo-radiation combo treatment, due to distance and transportation issues and bad snow packed winters there is no way i could possibly do the treatments without complications (i could be stuck for a week due to snow) I asked if surgery was possible to just cut it out and get it over with. On Oct 31st they put me through respiratory testing for 2 hours so i will find out Nov 4th if i passed, once this clears and my healthcare insurance provider gives authorization okay, they are going to go in and take out half of my right lung or as much of the area that is covered in this mass, nothing has been said about the spindle cell and i'm so confused i can't stand it and i'm scared to death and hope i'm making the right decision here, i've read so much about spindle cell and had no idea there were so many different types, can anyone please help me understand this..??
Hi Gigihope and welcome to the Online Community but I am sorry to hear about your diagnoses.
This post is now over 5 years old now so the member may well have moved on from the community.
I can see that you have put up another reply to a post on our Soft tissue sarcomas support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
The best way to connect with this group is to join the group by clicking on the “Bold Link” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)
You can put up your own post and introduce yourself to the group by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further
Hi ChrisS2024 and a warm welcome to you to the Community........ The last post on this discussion is over 11 months old.
You may benefit from joining and posting in our……
and
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
To connect with a group click on the “Bold Italic Links” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [ + Create new post] or [ + ] in the top right of the group page.
