Blood in Urine

Hello and welcome to the community, although I can see this is worrying time for you. I am from the bladder group. Bladder cancer was once described as an old person's disease, but we are seeing more younger people with this. Blood in urine can be caused by a variety of things, but if it does turn out to be bc, then be aware it can be treated successfully. The standard tests when you see the urologist could be a basic ultrasound or more likely, a flexible cystoscopy. A camera in to the bladder to see what is going on. A simple procedure and sounds a lot worse than it is. You are able to see on screen for yourself. Hopefully, it may turn out to be something innocent. Best wishes.

Thank you Riley. Its a waiting game for now, at the same time  appearing unfazed to family so they don’t worry too. This has been a valuable release valve as i dont have any other ways in which to discuss. My wife and kids would be supportive if and when the time requires but for now it is a lonely existence.

Appreciate your reply, thank you once again

The waiting, the uncertainty and the unknown is something many of us here are very familiar with. You have probably had a google which is what many people do. Just be aware that a lot of the info out there is out of date or misleading. There is always someone here with answers or just if you need to talk. Best wishes.

I've had blood in my stools and urine Nothing more than my piles It was terrifying though Good it's being checked out though

Threeblindmice thank you for the insight, very interesting and to some extent comforting that other conditions may also present such symptoms, glad to read you are ok. May ask if your symptoms included frequency night time urination too?

Hi Albert,

Did they test for protein loss, as well as for blood loss?  Kidney disease, also, is associated with protein and blood loss (proteinuria and hematuria).  My husband was 51 when he first started showing signs of both.  Here in the States, a person has to practically have a soccer-ball sized tumor wheeled into the office in a wheelbarrow before they get excited about much of anything.  He, also, was retaining fluid in his ankles, calves and abdomen.  At several points they were diagnosing him with pneumonia, when he didn't really have it. 

We fought and fought for years, for a complete evaluation of his condition.  Eventually, at our insistence, they did a kidney biopsy and diagnosed him with idiopathic (cause unknown) glomerulonephropathy (MGN).  There are but only a few kidney disease (that I'm aware of) which can be caused by a number of things.  Turns out my husband's disease was caused by Hepatitis C (cause also unknown), a known cause of this particular kidney disease.  Unfortunately, in my husband's case, they only ran a screening test for Hep C, years earlier, missing the Hepatitis entirely.  He just became sicker and sicker for years.  Once he ended up in ICU, they decided to run more extensive tests . . . tests that should have been run years earlier . . . LOTS of serious, life-threatening things happening along the way.  The doctor who eventually diagnosed and treated the Hepatitis, ran what was called a PCR test which finally diagnosed him correctly.  After completing his treatment for the Hep C, his kidney disease resolved and he enjoyed reasonably good health until 2017 and ultimately this past spring (April, 2018) discovered he had Diffuse Large B-Cell Non-Hodgkin's Lymphoma (aggressive blood cancer of the lymph nodes). 

My point in all this is, do NOT let this go.  Stay on top of it and fight for answers that make sense to you. 

I am not a doctor or a nurse.  I am just an old lady, living in the U.S. with a huge chip on her shoulder who loves her husband of 40+ years, madly, and wouldn't take no for an answer.  He, simply, was too young and too healthy to become so progressively ill for way too long. 

Should you have any questions for me, please don't be shy in asking.  I'm just a click of the mouse away, even though we are separated by a whole lot of water.

Best wishes in your quest for answers.

Having been told that I have bladder cancer and need to have surgery, my life seems to be on hold. I know that I need to have it but I feel so scared of the outcome . what happens afterwards!!!! Please can someone tell me .

Hello and welcome to the community. Could I suggest you join us and post your concerns in the Bladder Group . There are many of us there who have been through this and come out the other side. We can help you through this and let you know what to expect. Best wishes.

A warm but slightly weird welcome to the Mac site. Everyone has been where you are. And that moment when you think 'do you mean me?'

I can assure you I am in afterwards now. One year since my diagnosis- mine was breast cancer. And things have changed of course they have. Some people are still in my life and others have gone, not everyone can cope with cancer. But I have different friends. A different 'sod it. do it' look on life. Was this last year fun. Not every day. But some of the crappity crap crap was needed to make sure I am still here.

Less of me and here we go for you

Bladder Cancer Group you will find support from those who are at all stages of this and who are surviving the poop.

rily is the champ for there so tagging him, he will bring  great advice too.

Wishing you a gentle way through this

Leolady56

Learn2Live - So much experience and energy in your post, sincerely appreciate the support and advice.

I am really at the early stages of this hopefully short journey to establish what is causing the frequent nightly urination and the detected blood in my urine. I respectfully noted all you mentioned regarding protein indicators and hep c and will incorporate into discussions with the urologist. 

Thank you