Secondary lymphoedema following prostate surgery and radiotherapy

Hi

I had a radical open prostatectomy in Feb 2023, (43 lymph nodes removed) followed by 37 fractions of Radiotherapy starting in October 2023. I now have lymphoedema in my right leg (mainly - some in the left leg too).

What I’m after is other people’s experience on this. I was told it was quite rare to get it in this way, but the more people I talk to, the more common it seems to be.

So what are others’ experience? Have you experienced this under these conditions? What treatment / management do you need? Have you noticed any improvement or deterioration in your condition? I’m struggling to find people who have experience of more than a year or so of this  

Many thanks

Paul